Dumenci, L., Matsuyama, R., Riddle, D.L., Cartwright, L.A., Perera, R.A., Chung, H., Simonoff, L.A. (2014). Measurement of Cancer Health Literacy and Identification of Patients with Limited Cancer Health Literacy, Journal of Health Communication, 19(2):205-224.
To develop an instrument designed to measure cancer health literacy along a continuum
Used a Delphi Panel to discuss domains of health literacy and evaluate various definitions of health literacy. Researchers also conducted and recorded 6 focus group sessions to elicit their understanding of cancer health literacy. For both groups, a qualitative content analysis was used to analyze the transcripts. Transcripts from both groups were supplemented with recent research reports and the research team examined the materials to each write 25 test items. The research team met and revised a list of 112 items that was pilot tested with cognitive interviews with 25 patients diagnosed with cancer. Items identified in the interviews as redudant, unclear, or slightly related to cancer health literacy were eliminated to result in 76 items.